General Information for Patients
Cardiovascular disease is the number one cause of death and disability in Australia. Each year there are approximately 55,000 heart attacks across the country. Over the past decade, the number of cardiac procedures performed in Australia has increased steadily and these procedures represent high cost, high volume and are also a relatively high-risk component of Australia’s health care system. One way to monitor the cost and risk associated with cardiovascular disease is to use Clinical Quality Registries to measure the success of the treatments provided.
What is a Clinical Quality Registry?
Clinical Quality Registries are large, centralised databanks of health information used to assess and report on the quality of health care with the aim of facilitating service improvement. Information collected by clinical registries assesses whether care is safe and effective and delivered in a timely and appropriate manner. In order to improve the quality of cardiac care, we need to know what factors contribute to procedural complications and which procedures have the most successful outcomes.
A registry such as VCOR collects
- Core data with "epidemiologically sound" data elements
- Data entry close to the clinical event
- Outcomes to 30 days
- Consecutive cases (all relevant cases at the health service are included)
- Data linkable to external databases for the determination of delayed outcomes
What is VCOR?
The Victorian Cardiac Outcomes Registry (VCOR) has been established to collect information about cardiac treatments and interventions performed in Victorian hospitals. The aim of the Registry is to improve the safety and quality of cardiovascular healthcare to patients in Victoria.
Where is VCOR data stored?
The registry is stored on secure services at Monash University. The database is managed under an ISO/IEC 27001 compliant Information Security Management System (ISMS). Monash University is the first Australian University to achieve accreditation for its management of research data systems. In 2014, VCOR was included under Monash's ISO/IEC 27001 certification.
What happens if I don't want to have my details included in VCOR?
If you do not wish to participate in the Registry, you MUST contact VCOR directly to advise that you DO NOT want your information included. Please refer to the information provided on our Opt-out of VCOR page.
What sort of approval do you have to collect my information?
VCOR is approved by a Human Research Ethics Committee at every participating hospital. If you have any ethical concerns about this project, questions about your rights as a participant, or would like to make a complaint about research conduct, you should contact the Human Research Ethics Committee (HREC) at the hospital where you were treated.
What sort of information will be published from VCOR?
We will produce general reports on cardiac outcomes for public, government, clinical and academic audiences. We anticipate that these publications will help to inform us about common trends and/or gaps that may exist in service provision. No publication or report will ever contain any identifying information about patients.
Researchers may use unidentified, group data for future research projects however, any research using VCOR data will require specific approval by a Human Research Ethics Committee.