Frequently Asked Questions
What is the Victorian Cardiac Outcomes Registry?
The Victorian Cardiac Outcomes Registry is a population-based clinical quality registry that aims to improve the quality of care provided to patients with cardiovascular disease. Clinical registries are large databanks of health information used to assess and report on the quality of care within specific areas of the health service.
The Registry collects information about what happens to people who have had specific cardiac procedures or interventions (e.g. Percutaneous Coronary Intervention) or cardiovascular events (e.g. ST-Elevation Myocardial Infarction). We collect information from hospitals and patients to find out about the treatment and care received in hospital, complications occurrence and how well patients recover after their hospital visit. This information is used to assess the quality of care provided across the hospital sector and to monitor treatment outcomes, track complications and help identify trends and/or gaps that may exist in the provision of cardiac services.
Why is this information being collected?
The Victorian Cardiac Outcomes Registry aims to ensure that patients and their families affected by cardiovascular disease receive the best possible care but to do that we need to know what factors contribute to procedural complications and which procedures have the most successful outcomes. Quality indicators collected by clinical registries assess whether care is safe and effective and delivered in a timely and appropriate manner.
Why do you collect identifiable information?
Identifiable information about you is stored in the Registry because we may need to be able to link back to your medical records to follow-up on your health status after the procedure. The identifiable information that we collect does not exceed that already stored in your medical records at the hospital in which you were treated.
How is the information stored?
Data is pooled together and maintained securely by the Department of Epidemiology & Preventive Medicine at Monash University who have extensive experience and expertise in managing registries across the health sector.
Data is kept for an indefinite period because we hope to track the long term outcomes for patients of cardiac procedures into the future.
How will this information be used?
We produce general reports on cardiac outcomes for public, government, clinical and academic audiences. We anticipate that these publications will help to inform the community about common trends and/or gaps that may exist in service provision.
No publication or report will ever contain any identifying information about you.
Will you keep my information private?
Absolutely. Any information that can identify you will be treated as confidential and stored securely.
Identifying information is protected by privacy legislation and would only be disclosed with your permission, or in compliance with the law. All data is safeguarded by State and Commonwealth privacy laws. We will ensure that our security measures conform to national standards to prevent unauthorised access.
Access will be limited to approved Registry staff. Any future access to registry data by other organisations or researchers will be approved by a Human Research Ethics Committee and will be bound to the same State and Commonwealth legislations.
No identifiable information will be shared.
To ensure the security of the information we store, the Registry uses a highly secure internet connection (known as Secure Sockets Layer) to protect against the loss, misuse, and alteration of any information we store about you.
VCOR complies with the national operating principles and technical standards for Australian Clinical Quality Registries and the National Statement on Ethical Conduct in Human Research, as set out by the National Health & Medical Research Council. Anyone wanting to access the information stored in VCOR will be required to obtain ethics approval from an Australian Human Research Ethics Committee.
Is it compulsory to participate?
No. Participation is voluntary. We understand that not everyone is comfortable having their personal details stored in a data bank.
If you DO NOT want your details recorded in VCOR, please go to our opt out page for information about how to remove your data form the registry.
What are the benefits if I participate?
Cardiovascular disease is the number one cause of death and disability in Australia. Over the past decade, the number of cardiac procedures performed in Australia has increased steadily and these procedures represent high cost, high volume and are also a relatively high-risk component of Australia’s health care system. One way to monitor the cost and risk associated with cardiovascular disease is to use Clinical Quality Registries to monitor the success of the treatments provided.
By identifying the trends and/or gaps that exist in the provision of cardiac care, we can help improve hospital processes and procedures across the health sector (both public and private) by sharing information Victoria-wide. This information can also be used to influence the government policies that surround the provision of cardiac care Victoria wide. It may even help to identify areas that require more funding or resources to improve patient outcomes.
Having your information stored in the Registry will not affect your health or impact upon future health care or your relationship with doctors, surgeons or clinical staff.
I have more unanswered questions.
Please visit our Contact Us page if you still have a question that has not yet been answered.